That is what the dude thought at my exam Monday. He thought I had CP. My Mommy told him no, I told him no. Then his eyeballs get big and he says "You mean she didn't always walk like that?"
Yep....I think I freaked him out a bit. Anyway I rather liked the Neurologist but unfortunately he told me I am too complicated for him to really deal with my case. After hearing my story he said that he thought it was quite possible I have some rare genetic disease....he agreed with the Dystoina thing, but he wants to know the reason for it.
I did not have an EMG test ....They gave me an EEG!! Oh , BLAH. At least they did not use cement, they used some sort of putty stuff that washed out a great deal easier.
I am a bit unhappy that I am so complicated... I am also not glad that people think I have CP (Cerebral Palsy) when I don't. ( the dude that did my exam is not the first person to say that)
Anyway....I am what I am , I know there are unusual things about me, sometimes I think I will never be understood by the medical community.
Well at least I have a heck of a lot less seizures and that's a good thing, also the sun is out.
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