I.V. And Other Happenings...

  Yesterday I went to i.v. for the first time in quite awhile, I had to tell some people I know about all the stuff the happened to me since last time I saw them. The hospital stay, withdraw, Dystonia, levadopa....I am going to be an Aunt ( they normally ask about Katie too) .
  Wow this year has been a bit extreme, so it seems.

 Now on to something else......
I seem to be falling down too much ( in my opinion) , I think I am either falling asleep or fainting. Mommy thinks it is a seizure type thing.

 I am not sure what to think about it, I still am doing a lot better in my opinion even with the fainting or whatever it is included in the number of seizure things I have it is still way way less than what I was having.

One thing that is incredibly annoying is when people ask me what am I going to do with my new freedom....well I don't really have much change in that , I still am having stuff happen every day , I cannot drive , I cannot walk far, I still fall  ( at random hours of the day) .  Yes I am very much better but I am not completely well.

I know they do not mean to be annoying ...I am just frustrated  with my body , and for some odd reason that question usually leaves me saying " I don't know" , which I probably really should explain how I currently am instead of just " I don't know" , If you want to know why I say it I'll tell you....I feel like a party pooper when I tell people how I am .

  You know ...people are so excited ( I am too) but sometimes I feel like I am a disappointing downer when I am truthful.

As a matter of fact , it is part of the reason I hide stuff from my parents...Not only do I find trips to see the white coated people ( doctors) unpleasant I feel like I am raining on somebody's parade.

 So ...I am doing a LOT better however.......I am not cured.

 On to something else....
I went shopping a bit after I.V. and bought a new dress from Gabes and a white sweater for my church dresses anyway, when I came home I tried on the dress and found that the buttons did not match up with the button holes!!  I really did like the dress so I cut off the buttons and sewed them back on in the proper places, it was not that hard to fix plus the dress was very cheap .  So that was that.

Party In The I.v. Room and Other Happenings

 Today I had to see the doctor. I guess I'll be trying Lamictal .
After that I had i.v. , my friend the lady with the red bag was there and someone new............Mike.
 Mike saw my leg brace and he used to have one too, he had to have it for years but he doesn't need it now. That made me happy, he doesn't need it now...and sad, he had it for years.
Mike doesn't have a gallbladder either.
Mike eats similar foods as me.
He was very nice and told me a joke.
He wore my helmet some, and asked if it suited him ...I said maybe if it had a different colored flower on it. He said if it had cauliflower on it!!! I said I thought broccoli would suit him best , " Good, that's my favorite, said he".
We laughed and laughed.
One of the nurses said it sounded like a party in there . ( That's  because we made it one)

Mike doesn't have seizures.. he has cancer.


Afterwards Mommy took me to the store so I could get some new shoes, I needed some for fall and since I have to get 2 different sizes I thought I had better get them early before sizes sell out. Well we found one that fit the brace and one that fit the other foot but they were not the same style, I was disappointed.
Then later a person that worked there asked me if I found what I needed and I told her my tale of shoes and she and another lady found me what I needed!!
Hooray for Wal-Mart !!! When you need to buy two sizes without going broke it works.
Kids sizes always seem to have less selection , and when your in your 20s it can be rather frustrating.

Sunday I made it to church and had lunch with Grandpa!!
Afterwards rubber band man came!! He used to be a postman and he goes around shooting people with rubber bands and giving them rubber bands so they can spread the love. The first time I met him I was afraid of him because he shot rubber bands at me through the open can window when I was ten and I was setting in there waiting for my Dad  and rubber band man said to let him in!!!!! No way was I letting a strange rubber band shooting fellow into the car when my dad was in the store. It turned out he knew my dad. 

Last summer we became friends again at my cousins wedding.

Saturday my dad took me to a concert and Grandpa came.
I really enjoyed it , I had lots of seizures and that was not so good.
A man came up to my dad and told him that he really should give me some cannabis, that he didn't smoke it when he was a kid and that he really missed out and he had a friend that has seizures and it helped him. ( slightly surprising since it wasn't that kind of concert, or place ...I mean I think the place was even a tobacco free school zone!!)

Anyway I wish it was legal for everyone...............I wish.

Brace Man

Today I saw the brace man and everything is fine. He gave me some new foam for my afo. Afterwards Mommy and I went shopping and I returned a pair of shorts I got awhile ago. I bought a new skirt and a new shirt with the lorax on it.

I am tired. I do not have much to say.

My brother is taking his collage entrance test tomorrow. If you are a praying person please pray he does not panic.

Today he is worried and looks awful.

He was STILL asleep when Mommy and I came home.

I think he was up worrying ALL night.

Strange Day Of Cuteness

 Today a woman at i.v. that I have never seen before was saying how cute I was and then wanted to know how old I was so I told her (23).
Anyway the conversation went like this:
" Oh she is so cute , how old is she?" ( the woman was asking my mom how old I was ) I replied "23"
the woman got a strange look on her face " Oh my gosh , she is just so cute I never would of guessed that she was in her 20s . That is just so adorable, I mean adorable! Oh my gosh!"
  I said " Thank you!!"  I thought it was funny . She went on " you look good, real good "
" Thank you." I said again.
I get a kick when I amaze people about my age.

Then coming home a woman at the toll booth thought my sunglasses were so cute. It is very rare for a toll booth worker to want to chat about how cute your sunglasses are, or talk about anything, they have to keep traffic moving.

Someone at the doctors said I always have the cutest socks.

All I can say is thanks.

Like I say, today was a very strange day of cuteness.

I Went Shopping Yesterday

I went shopping with my mom and my sister that is going to get married . She was buying some stuff for the wedding , invitations and something else that I could not stop laughing at so my mom grabbed my wheelchair to wheel me away , I told my sister I was sorry and she did not care, she was laughing too! Mommy bought me a new outfit and some shoes that will work with my bridesmaid dress which was amazing because it is so hard to find any that fit over the brace and then we have to buy a smaller pair for my other foot. I also bought some rings with flowers and bows and monsters . I got a new scarf with hello kitty. It was mostly a good day I was very very dizzy though. I had the normal amount of seizures.

Oh yea, I nearly forgot when we first got to the store my chair would not work but my brilliant Mommy fixed it!! One of the wheels was not touching the ground.

Also Mommy took us to my favorite Chinese restaurant. 

Oh yeah also there was a girl who was wearing boots with heels that were about six inches tall ..she was staring at my brace and my different sized shoes with the look of complete horror on her face, I wish I knew what she was thinking.

A Helmet Can Be an Fashion Accessory

Haha, But for real it has got to work!!

Something Rather Goofy

Here is something goofy....there is a sort of hat I have been wanting since before christmas of last year but I asked no one because I thought that since I wear a helmet nearly all the time a hat would be rather pointless and not very practical, well anyway I came across them on the web again and I want one even more, basically the only time I wear hats now is when I am setting in my wheelchair or setting in the sun. I always have loved hats . I am very tempted to buy one. I want one of those hats so much I have thought of ways to maybe line the thing with foam so I have some head protection. The thing is I do not think the foam idea is any good because I do not think it will fit on my head anymore when I get enough foam in there.
https://www.facebook.com/wiggystudio

I just really like those hats!