I Will Have My Vodka With My Tea, Thank You.

It does a sore throat good, probably not the best thing for seizures or ingesting with my med...but like I say it does a sore throat good and, makes me glad. Sometimes I just gotta do what I gotta do. My parents understand. Jesus made wine.

Went To Church

I am feeling some better but still sick. It takes me a while to get over stuff. The sermon was about Romans 12: 11, mostly. It was about slothfulness. The church puts it's sermons on sermon audio. It is called Ferndale church. This weeks sermon is not up yet but here is a link if you want to listen to what I do most Sundays :
http://www.sermonaudio.com/source_detail.asp?sourceid=ferndalechurch.

The Sun Is Out, Because I Needed It To Be!!!

I am still sick and it is a bit cold out there but still the sun is out.
The full moon kept waking me up last night, it happens every time there is a full moon , even if the window blinds are shut. The dog woke me up at 3:00am ( I think she got sick from me). This morning one of my siblings did something that has made me very very VERY upset, but guess what? The sun is shining and everything is all right. Still I wish the offending sibling was still small enough to get a spanking because they are just going to have to learn a much harder way now, you know, LIFE. The sibling always seemed to have to learn the hard way, even if they got punished! Some people I will never understand.

What I Forgot To Tell You About Sunday,

Daddy got me some wonderful flowers. I love them. I love to draw them!

I Went Shopping Yesterday

I went shopping with my mom and my sister that is going to get married . She was buying some stuff for the wedding , invitations and something else that I could not stop laughing at so my mom grabbed my wheelchair to wheel me away , I told my sister I was sorry and she did not care, she was laughing too! Mommy bought me a new outfit and some shoes that will work with my bridesmaid dress which was amazing because it is so hard to find any that fit over the brace and then we have to buy a smaller pair for my other foot. I also bought some rings with flowers and bows and monsters . I got a new scarf with hello kitty. It was mostly a good day I was very very dizzy though. I had the normal amount of seizures.

Oh yea, I nearly forgot when we first got to the store my chair would not work but my brilliant Mommy fixed it!! One of the wheels was not touching the ground.

Also Mommy took us to my favorite Chinese restaurant. 

Oh yeah also there was a girl who was wearing boots with heels that were about six inches tall ..she was staring at my brace and my different sized shoes with the look of complete horror on her face, I wish I knew what she was thinking.

The Last Few Days

I was sick. I feel much better today , I went to i.v. yesterday. I didn't go to church on Sunday. I am much better today. Daddy did not realize I was feeling so bad till I told him I was not going to church. Today I get to spend time with my sister that is getting married :)

A Helmet Can Be an Fashion Accessory

Haha, But for real it has got to work!!

The Wooden Helmet Girl

http://www.classicreader.com/book/995/24/
Hatschihime.
Check it out people .

Something Rather Goofy

Here is something goofy....there is a sort of hat I have been wanting since before christmas of last year but I asked no one because I thought that since I wear a helmet nearly all the time a hat would be rather pointless and not very practical, well anyway I came across them on the web again and I want one even more, basically the only time I wear hats now is when I am setting in my wheelchair or setting in the sun. I always have loved hats . I am very tempted to buy one. I want one of those hats so much I have thought of ways to maybe line the thing with foam so I have some head protection. The thing is I do not think the foam idea is any good because I do not think it will fit on my head anymore when I get enough foam in there.
https://www.facebook.com/wiggystudio

I just really like those hats!

What Have I Been Doing?

Drawing and reading and laying in the sun on the deck, but today it is raining. Also I helped my sister find bridesmaid dresses. She decided on blue. I guess I won't get a pink dress. I really do not care, she wanted so many colors in her wedding I wondered how she was planning to pull all of it off. I miss my sister. She has been so very busy and when she is off work she goes to see her beau . I told her she should take me somewhere so she said o.k. She is planning to take me to the mall sometime when she is off, I told her that her man can come too.

Another thing that I have been thinking deeply about is how the sermons at church now
(about love) tie into the ones when we left our old church( the different kinds of love). That was about eight years ago...I think I had a better memory then. Anyway it goes to show that even if you think your kid is not listening.. they might be. I am not saying I always listened....lots of times I did not.

Even more stuff that I have been thinking about is recently a friend and the sister that is getting married have had a bad something. Not really a fight , I guess disagreements and hurt. It is too complicated for me to begin to describe it. I feel like the grown up world is too complicated and there is just too much I do not understand. I wish I could fix things but it does not even have anything to do with me, nor does anyone expect me to fix things or understand the situation. I do know one thing that I can do though....PRAY.

Amazing Wonderful News!!!!

As some of you know my family has been renting a hyperbaric chamber for me to use. Anyway I have rather liked it after my wonderful skilled Mommy figured out how to slowly up the pressure for me so it would not hurt my ears so much. Well , I have been doing it every day like I was told to and MY SEIZURES HAVE BEEN A LITTLE SHORTER!!!! :) I still have been having the same amount but I am so glad something positive has happened , maybe they will get shorter and shorter and then go away and never ever come again . I am excited....... Hope!!!

Saturday I Went To California To See Bob Dylan

California PA. that is. It was so wonderful, I am so happy :) I have wanted to see Bob Dylan for years.  Saw a good friend there and a good friend came with my Dad and I. I am just so very thankful I got to go. I was afraid I would not get to go because my Dad needs a helper( because of me) to go to stuff like that. I am a handful, He he. Cannot be left alone. The Cal U Convocation center treated us like royalty and escorted us to our seats, the place is very accessible and there is a family bathroom right there. There were no worries about me crashing in some woman's room and my Dad having to save me. Someone really had thought that out. You never know when I might go crash on some cement floor.

The Best Film I Ever Saw, An Infinite Tenderness

http://eclecticbooksandmovies.blogspot.com/2012/10/an-infinite-tenderness.html

I highly recommend it for everyone. Yes, it does have sad parts, but it has happy parts too. Do not give up watching it . It may not start out with much action but keep watching, please.

Today is one of those days when I keep asking myself WHY DID I AGREE TO DO THIS? I did not like the hyperbaric treatments at the doctors office why would I think they would be any better at home?? They are much rougher. The truth is I agreed to it because so many people have told me of the wonders it can do and I could be basically cured, well I guess I will find out.

Are You Still Out There , Boy Who Licked Toads??

 I sit on the deck and listen to the birds and frogs make their music. I lay down and watch the clouds go by, my life is going by with the clouds.. we all have a limited earth time. I have been thinking about my very early childhood friends , the boy that always wanted me to lick..yes LICK toads with him( I never did) and the older girl that always insisted I didn't know how to sew . The kids I never talked to but we stared at each other at church. What ever happened to the boy that always went in the woodshed to hide and lick toads? He moved. I don't know what happened to those other kids. I wish I did. Would that boy still be my friend? He was older than me. Is his mouth full of warts? I wish I knew.

I Am So Happy About The Sun, And Bob Dylan!!!!

I Went outside in the sun and laid in it, it makes me happy. The goat came and kissed me. Flowers have just poked their heads out of the dirt. Spring is so wonderful. I love the way it smells...until they put poopy on the fields. He he! Also my Dad got the Bob Dylan tickets I was talking about before and also my hyperberic chamber is being set up. I LOVE Bob Dylan, I am so excited. The hyperberic chamber is o.k. I hope it helps me.

I.V. And Bad Stuff And What Is On My Mind

My good vein is finally back to normal, however it has been getting poked normally weekly for the past four years and this year twice a week and its getting used too much. I also have noticed that my legs and arms are rather puffy afterwards and it take two days for my weight to go back down to normal...when you do not even weigh 90 pounds you find the normal dose of stuff is too much. Also my seizures are not responding as much as they used too, they still are responding but not as much. One thing that's really getting me down is friends dying and ....I am just sad about it. Part of life is death because of the fall of man. How could Eve do such a thing????? Eve, did you not think? Adam you were not very bright either........I hate you both. The thing about all this that really is sickening is we ALL sin like Adam and Eve. I guess what I am trying to say is I HATE SIN ,I HATE DEATH!!! Some days I feel as though I have a thousand sorrows but the reality is I have millions of things to be happy about and I really ought to be full of hope and joy......I fail, I sin, I am human. Yes , I WANT TO SAY BAD WORDS!!! I need to seek peace though....there is a reason for everything and I believe it. Basically that is what is on my mind and I had to get it out.

Dreams in The Day , Dreams in The Night, Smelly Daydreams

 Last night I had lots of dreams ....bad ones mostly, about people dieing. People from i.v.
Anyway I was glad to wake up because then I knew it was only a dream but as the day went on something worse bothered me ...my daydreams. My daydreams are abstract , someone may be talking to me and I start smelling this tofuish chocolatey smell and then I see the green waves with blue specks in my head. Those daydreams are overwhelming and I hate them , mostly the smell. I know it sounds crazy thats why I do not tell people . Does anyone else daydream smells?

Music is Good For My Soul

Yesterday my family had the most wonderful house party. There were a good many people I did not know and they were some that I have known for years. The music was amazing but the most amazing thing was the people that were there. Everyone one was kind and nice, not a sour person in the lot. I stayed up wayyyy later than normal and also drank some wine. I played with a little five year old, who was not frighted a bit when I had seizures. She did not mind. We played cooking, house, and princesses ..all those things I find myself still enjoying despite my age. May be silly but when a little girl needs someone to play with I still vividly remember myself at five , so it really is not that hard at all. There was so much love and peace. 

I also sold three of my drawings , that made the evening even better. It is one thing when a bunch of folks say you could sell your work and another thing when they actually buy it.
Peace Love and Happiness.

The Dentist

So yesterday I went to the dentist . I have never had any cavities but since it had been over a year since I last went ...I went. I got a bad headache, I always do when I go there. Anyway I have always drawn pictures since I was little for the dentist so I still do, he expects it and last time I did not give him one he said I should give him one next time. The tooth cleaning lady sad that was not necessary and rather ridiculous for him to ask a twenty something to do that . He he ..the truth is that I like to draw him stuff and I did this time. He had an enormous smile on his face and said " I can always count on you for things like this". It made me happy. No matter what my age I love to give people drawings and if people think I am weird that is not my problem.

Death and Resurrection, My Hope and Also About My Sadness

 Today, I found out a friend of mine had died. He said he would get better because he wanted to dance at my wedding ...someday. Well when you think about it as Christians we are the church and the church is the bride of Christ, we will probably be dancing at THE wedding . Resurrection...something to long for, something I dream about. I want to loose the leg brace and the helmet, I want to be able to walk properly and not have seizures. I don't know if we even will have to walk then, but I am sure I would not need a brace anymore .
 The thing about all of this is if I had not been sick I would of never met this friend. Everything has a reason...EVERYTHING.

Also today I found out Daddy's truck is done for, and Cleveland Clinic wants lots of money, I thought that it was taken care of.

Today at I.V. I did get to see Ralphie !! He made me smile and made time go faster.

I also felt well enough to go shopping for a bit , almost an hour and got a new dress and a pair of pants since my favorite ones are falling apart. I have had both favorite pairs for five years and one pair cost five dollars and the other three , so I guess that I go my dollars worth.
 Anyway today was hard. I cried before I left for I.V. and I cried when I came home because my Dad was so sad and I had to tell him about the death. And I want to cry now because I keep messing up my typing. Life goes one.....and I MUST trust in God because I could not deal with days like this without Him. That is that.