Today was fine....

 I went to church , took a nap, finished a Nancy Drew book I was reading, Made a slip so I can finally wear a skirt that was slightly transparent and drove me nuts.( it was sort of like that poly blend stuff not all cotton like I like)

Oh yeah ..who would of guessed that Nancy Drew is distantly related to Bonnie Prince Charlie on her great-grandmothers side ? There are far too many ghost writers in that series...... It just feels like a different person wrote that one.

The middle strap on the  hyperbaric chamber came unhooked and popped off while I was inside and it scared me!!! It was o.k. though , Mommy fixed it.

Yesterday

 My necklace broke, the sapphire fell out. I kept getting a bloody nose that mostly ran down my throat. I was extremely tired but I was better than I was that day last year!!!!
My Valproic Acid might be giving me the bloody noses, hopefully it will cut it out.

Did not go to church today, did not go in the hyperbaric chamber yesterday.
Not much I want to say.

Ralphie

Today I went to i.v. and Ralphie was there. It is always fun when he is there. He fell asleep and I wrote his name and a little flower with my etch-a-sketch and when he woke up he told the nurses he did it, but they did not believe him. Ralphie does not seem like one to draw flowers. He he. Ralphie has his invitation to my house I made him hanging on his fridge . He did not get to come but I sure hope he comes someday, he said he would like to.

When we left this morning it was only 40 some degrees outside so I wore pants but 2 hours away where I get i.v. it was in the 70s ! I was sad I was not wearing a skirt. I do not like pants very much. Afterwards we went shopping . When we came home Ethan ( my sisters boyfriend) was there. I took a nap, I ate dinner. I went in my hyberbaric chamber. That's what I did today. I also fixed up my room slightly as it was somewhat messy.

Amazing Wonderful News!!!!

As some of you know my family has been renting a hyperbaric chamber for me to use. Anyway I have rather liked it after my wonderful skilled Mommy figured out how to slowly up the pressure for me so it would not hurt my ears so much. Well , I have been doing it every day like I was told to and MY SEIZURES HAVE BEEN A LITTLE SHORTER!!!! :) I still have been having the same amount but I am so glad something positive has happened , maybe they will get shorter and shorter and then go away and never ever come again . I am excited....... Hope!!!

Today is one of those days when I keep asking myself WHY DID I AGREE TO DO THIS? I did not like the hyperbaric treatments at the doctors office why would I think they would be any better at home?? They are much rougher. The truth is I agreed to it because so many people have told me of the wonders it can do and I could be basically cured, well I guess I will find out.

I Am So Happy About The Sun, And Bob Dylan!!!!

I Went outside in the sun and laid in it, it makes me happy. The goat came and kissed me. Flowers have just poked their heads out of the dirt. Spring is so wonderful. I love the way it smells...until they put poopy on the fields. He he! Also my Dad got the Bob Dylan tickets I was talking about before and also my hyperberic chamber is being set up. I LOVE Bob Dylan, I am so excited. The hyperberic chamber is o.k. I hope it helps me.

I.v. and Hyperberic Chamber Treatments........

Twice a week I get I.v treatments and three times a week I get Hyperberic Chamber therapy. The I.v. makes a big difference in my seizures , I only have 3 or 4 the day I get the I.V. , The Hyperberic Chamber I cannot tell any difference. The trip is 2 hours away and one thing is for sure,  I wish it was closer. I have lots of friends at I.V and I always like seeing them , I never would of met so many people if I was not sick. I also made friends there one week and found out the next they had died. It has been a little hard for me not to start crying about it in the I.V. room, especially if I have to sit where they used to. I don't talk about this, I just don't. Also I lost some friends because they don't want to talk to me anymore it seems . I didn't mean to offend them. There was a couple who always would talk to me and we were really good friends they were Catholic and told me stories about Saints sometimes , I am not Catholic....One time they were telling me a story I knew nothing about and they said  I should know about it already, of course I didn't so I told them I didn't because I was not Catholic...they didn't tell me the rest of the story and they never spoke to me again. I did not say it in a mean way. Oh well. I guess that's how things go sometimes. Maybe they were just caught off guard that I was not Catholic??? I say hello to them but that's the extent of our conversation now. Then there is Ralphie, I am very glad when he is there! He even gave me a pen with my name on it. He may look tough because he is a Motorcycle Dude,  but he is very nice.