In case you were worried dear reader...I am sorry.
My daddy and I went on a trip sort of suddenly.
I told my Dad I wanted to go to Virginia, so he took me!!
That was rather surprising as it is about 8 or 9 hours away.
He wasn't sure I was up for a trip but I am going to have seizures no matter what it seems so we went.
He is brave!
I have so many friends in Virgina and my dad even took me to see my pen pal that I met in 2011 at a conference!!!
I couldn't even remember the house number but I knew the street.
Daddy didn't give up, he found my friend and we stopped by.
Boy was she surprised.
We mostly smiled and looked at each others drawings, and then I got to see their animals, as they have a farm.
I just have so many friends in Virginia, I feel overwhelmingly blessed.
Showing posts with label Daddy. Show all posts
Showing posts with label Daddy. Show all posts
Thursday, August 29, 2013
Friday, July 19, 2013
Friends Can Be Found
Yesterday Daddy took me to a jazz concert and then afterwards we went to eat at Dante's. The concert was wonderful but so was what happened after dinner.
My Dad was taking to two young guys and I had a seizure ( They happen a lot in the evening) The two guys got silent and starred at me ( so I am told) . Daddy said I wasn't really o.k. but that it was my normal, the guys then told Daddy that their Mom has epilepsy and the rough times she went through.
The guys understood......my life.
Later Daddy went to get me some juice and I stayed and talked to the guys.
The one guy said that he wished there was some sort of technology to fix all my problems and then he said if only we could rid you of those God d@$%^# f#$%^&* seizures!
Well you know what? I rather liked those cuss words. ( I smiled)
Those guys told me I wasn't alone in what I was going through and that they did not believe in social barriers.
One day , they said, I shall kick epilepsy's d@%^#8 @$$.
They got silent when Daddy came back, probably because they were saying bad words, but somehow that didn't bother me at all.
I like those guys.
My Dad was taking to two young guys and I had a seizure ( They happen a lot in the evening) The two guys got silent and starred at me ( so I am told) . Daddy said I wasn't really o.k. but that it was my normal, the guys then told Daddy that their Mom has epilepsy and the rough times she went through.
The guys understood......my life.
Later Daddy went to get me some juice and I stayed and talked to the guys.
The one guy said that he wished there was some sort of technology to fix all my problems and then he said if only we could rid you of those God d@$%^# f#$%^&* seizures!
Well you know what? I rather liked those cuss words. ( I smiled)
Those guys told me I wasn't alone in what I was going through and that they did not believe in social barriers.
One day , they said, I shall kick epilepsy's d@%^#8 @$$.
They got silent when Daddy came back, probably because they were saying bad words, but somehow that didn't bother me at all.
I like those guys.
Thursday, July 18, 2013
Daddy Might Take Me Someplace
I am feeling better so Daddy might take me someplace.
Someplace with music!!
I think Jazz.
Someplace with music!!
I think Jazz.
Sunday, June 30, 2013
Better
I have been doing much better, had an extremely busy day yesterday and was not able to go to church today.
A surprise birthday party for a dear friend and a wedding that my sister was a bridesmaid in.
I am ever so grateful that my Dad does not mind carrying me up a lot of steps ..like a flight and he carried me a long long way through grass too.
Good thing I am not very heavy, sometimes I wonder if that's why God keeps me rather small so that my Dad can carry me?
Daddy is tough and big.
A surprise birthday party for a dear friend and a wedding that my sister was a bridesmaid in.
I am ever so grateful that my Dad does not mind carrying me up a lot of steps ..like a flight and he carried me a long long way through grass too.
Good thing I am not very heavy, sometimes I wonder if that's why God keeps me rather small so that my Dad can carry me?
Daddy is tough and big.
Thursday, May 2, 2013
So Much Better
Today was better than any day I have had in a long while.I still slept for hours in the afternoon but that's o.k. I enjoyed the sun quite a bit, my knees got sunburned!!! Oh yes... the apple tree has gotten blossom buds. I am just so excited, I like apples pretty much more than any food except for maybe tea. If people really were what they ate I would either be an apple or a tea leaf..maybe medical foodstuff LOL (apparently you can't live on apples and tea alone). Anyway my Dad and the sister that is not getting married went to Cooper's rock and Daddy will probably bring me sometime because they have wheelchair access , safer than me trying to walk around cliffs. I pretty much have to use the chair everyplace that requires walking because of my falling problem.And everyplace that I need to sit that does not have a high back seat with high arms because I fall out. How do I stay in the wheelchair? My chest gets strapped in, that's how. It is so much better than being covered with bruises and lumps from falling out of chairs and crashing to the ground. Yup that's how I can do it without getting myself beat up!
Thursday, April 25, 2013
What I Forgot To Tell You About Sunday,
Daddy got me some wonderful flowers. I love them. I love to draw them!
Monday, April 15, 2013
Saturday I Went To California To See Bob Dylan
California PA. that is. It was so wonderful, I am so happy :) I have wanted to see Bob Dylan for years. Saw a good friend there and a good friend came with my Dad and I. I am just so very thankful I got to go. I was afraid I would not get to go because my Dad needs a helper( because of me) to go to stuff like that. I am a handful, He he. Cannot be left alone. The Cal U Convocation center treated us like royalty and escorted us to our seats, the place is very accessible and there is a family bathroom right there. There were no worries about me crashing in some woman's room and my Dad having to save me. Someone really had thought that out. You never know when I might go crash on some cement floor.
Tuesday, April 9, 2013
I Am So Happy About The Sun, And Bob Dylan!!!!
I Went outside in the sun and laid in it, it makes me happy. The goat came and kissed me. Flowers have just poked their heads out of the dirt. Spring is so wonderful. I love the way it smells...until they put poopy on the fields. He he! Also my Dad got the Bob Dylan tickets I was talking about before and also my hyperberic chamber is being set up. I LOVE Bob Dylan, I am so excited. The hyperberic chamber is o.k. I hope it helps me.
Monday, March 18, 2013
I Think My Dad Will Take Me To A Bob Dylan concert !!
Coming to a city more than 2 hours away ( I think)! A friend let us know about it and I am hoping to be able to go. I will probably need the chair anyway so I can just be wheeled in. It is in April. Daddy checked to make sure wheelchairs can go there and it is fine so he said we will try to go. If it was not for that I think he would of said no. I am excited but slightly worried that it is too good to be true.
Tuesday, March 5, 2013
Turpentine Hugs
When my Daddy comes home from work he smells funny sometimes , all those chemicals where he works. I like to give him a hug when he comes home no matter what he smells like . Turpentine hugs are sometimes the sweetest ones , those are the ones when he is tired and a bit unhappy... It is not easy bringing the bread home for a family of six. He tells me not to hug him when he has so much chemical smells on him , but I know he likes it because when I listen to him and just say hi he gets rather glum. Yes, as strange as it sounds I have come to like the smell of turpentine.....It smells like hard work.
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