I have been doing very rough lately and .....pretty much everything is listed as a side effect. I do not want to go off this drug. I don't want to go back to the way I was.....I am afraid.
I also know my primary doctor does not really know much about this drug or about dystonia.
The neurologist said he did not know what to do with me that I was a rare case...he said I needed to see a specialist.
Johns Hopkins was booked until December....they said I should see someone before that so they referred me to a Parkinsons clinic that also deals with dystonia.
The paper work was mailed so now I wait for an appointment.
I wish it to come soon.
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