61 Pounds Of Paper, The Invasion Of The Bearded Men, And The Week Of Short Pencils

 It has been a while since I last wrote and quite a lot has happened.

I shall start with this, I was given the most wonderful gift of 61 pounds of paper....a wonderful thing, and it came in the mail!!! ( And I had just finished my sketchbook )

I have lots of colors and lately I have went crazy with my drawing....I have seven things I  feel the need to draw but so far I only accomplished five,  I don't think I will reach my goal this week unless I want my arm to fall off.

Last Saturday I woke up and found four bearded men laying on the couches....The Blind Owl Band.

They are a nice friendly sort of fellows...and they play good music and have a nice dog which Shasta, our dog, loved.

Daddy invited them over, after they were at the Moon Shadow Cafe .

 My Dad and I are in the middle as you can see.

Anyway..besides that I have been pretty rough the past few days, I am feeling some better today though. 

And that is that.

What I Did Last Weekend, And Yesterday....

 Yesterday Daddy brought me to a jazz dinner at Dante's which was amazing...I have to say I really like jazz. I also got to see one of my friends!!

Last weekend I got to go to 2 baby showers!! I got to hold a baby, thus I am very happy.

I was not feeling very good last Sunday and the second one was supposed to happen that evening so I slept in the morning , yeah I missed church but I am friends with the momma ...I felt like I should go no matter what! So I did!

Something really amazing is I won one a prize at the first one and TWO prizes at the second one.  That does not happen much.

Here are some photos of what I made for the babies.

 Everything is recycled..except for the thread. Hey if you do not go shopping that often you get creative, at least I do.

 I used to feel odd giving people my families re-purposed stuff, but one of my friends said he really liked getting stuff from me because it is made out of trash and turned into brilliance.  I had to laugh.

 Also last night we got a very exciting phone call, but I can't tell you about it yet though I want to burst. I am so excited!!  I will tell you asap.

Party In The I.v. Room and Other Happenings

 Today I had to see the doctor. I guess I'll be trying Lamictal .
After that I had i.v. , my friend the lady with the red bag was there and someone new............Mike.
 Mike saw my leg brace and he used to have one too, he had to have it for years but he doesn't need it now. That made me happy, he doesn't need it now...and sad, he had it for years.
Mike doesn't have a gallbladder either.
Mike eats similar foods as me.
He was very nice and told me a joke.
He wore my helmet some, and asked if it suited him ...I said maybe if it had a different colored flower on it. He said if it had cauliflower on it!!! I said I thought broccoli would suit him best , " Good, that's my favorite, said he".
We laughed and laughed.
One of the nurses said it sounded like a party in there . ( That's  because we made it one)

Mike doesn't have seizures.. he has cancer.


Afterwards Mommy took me to the store so I could get some new shoes, I needed some for fall and since I have to get 2 different sizes I thought I had better get them early before sizes sell out. Well we found one that fit the brace and one that fit the other foot but they were not the same style, I was disappointed.
Then later a person that worked there asked me if I found what I needed and I told her my tale of shoes and she and another lady found me what I needed!!
Hooray for Wal-Mart !!! When you need to buy two sizes without going broke it works.
Kids sizes always seem to have less selection , and when your in your 20s it can be rather frustrating.

Sunday I made it to church and had lunch with Grandpa!!
Afterwards rubber band man came!! He used to be a postman and he goes around shooting people with rubber bands and giving them rubber bands so they can spread the love. The first time I met him I was afraid of him because he shot rubber bands at me through the open can window when I was ten and I was setting in there waiting for my Dad  and rubber band man said to let him in!!!!! No way was I letting a strange rubber band shooting fellow into the car when my dad was in the store. It turned out he knew my dad. 

Last summer we became friends again at my cousins wedding.

Saturday my dad took me to a concert and Grandpa came.
I really enjoyed it , I had lots of seizures and that was not so good.
A man came up to my dad and told him that he really should give me some cannabis, that he didn't smoke it when he was a kid and that he really missed out and he had a friend that has seizures and it helped him. ( slightly surprising since it wasn't that kind of concert, or place ...I mean I think the place was even a tobacco free school zone!!)

Anyway I wish it was legal for everyone...............I wish.

Friends Can Be Found

 Yesterday Daddy took me to a jazz concert and then afterwards we went to eat at Dante's. The concert was wonderful but so was what happened after dinner.

My Dad was taking to two young  guys and I had a seizure ( They happen a lot in the evening) The two guys got silent and starred at me ( so I am told) . Daddy said I wasn't really o.k. but that it was my normal, the guys then told Daddy that their Mom has epilepsy and the rough times she went through.

The guys understood......my life.

Later Daddy went to get me some juice and I stayed and talked to the guys.
 The one guy said that he wished there was some sort of technology to fix all my problems and then he said if only we could rid you of those God d@$%^# f#$%^&* seizures!

Well you know what? I rather liked those cuss words. ( I smiled)

Those guys told me I wasn't alone in what I was going through and that they did not believe in social barriers.

One day , they said, I shall kick epilepsy's d@%^#8 @$$.

They got silent when Daddy came back, probably because they were saying bad words, but somehow that didn't bother me at all.
I like those guys.

Daddy Might Take Me Someplace

 I am feeling better so Daddy might take me someplace.
Someplace with music!!
I think Jazz.

So...I made it through the reunion!

 Yesterday we heard some music and ate dinner together.
The day before that I went to a parade and ate lunch,then I went home and took a nap.
The day before that my friend came to the reunion to play some music, also his family came and they are my friends too!! I was very happy. Here are some pictures of that day........

I did not see the fireworks but I got a phone call from someone I have not seen in a long long time, that is much better than fireworks. Fireworks are not really good for me, I have been told.

I has been great seeing everyone and I am glad I got to do what I did.

I Am Famous Now I Guess....

http://www.ironistic.com/local-art/

The flower drawing is my work :)

Yesterday I went to my grandmother's birthday party....

My friend played some awesome music!!! I was really really hoping that his daughter would be there ...but it was her grandma's birthday !!!!!!

And here is my friend, Prince, in the pink platypuses purse, he likes it and stays calm in there! ( the platypus is a webkinz).

I have been really rough still as far as seizures go ...I have had 30 something nearly everyday and 38 on the worst day. Today I am going to up my dose of Valproic Acid...hopefully I will not bleed. I have mostly been spending a good deal of time sleeping.

Cheat Fest and Dante's Jazz Dinner

 So Friday evening my Dad and I went to a jazz dinner . I felt well enough but evenings are very very difficult and the music and many missing pieces because I kept going out ( seizure). I am still glad I went . I ate some gumbo, the first dinner I had been able to eat in awhile. Saturday my Dad and I went to Cheat Fest ( Cheat as in The Cheat River), it was a lot of fun and I got to see some people I know. We stayed longer than planned and I was ready to go when we left. No one can understand how confusing it is when you go in and out of time and people are talking and music playing and sometimes you even end up in a different place because someone has pushed your wheelchair. It is quite trippy actually, sometimes it is interesting and sometimes it is extremely annoying.

Anyway I still had an awesome time and my dad is super super strong and can push my wheelchair through gravel!!!!!

Today I went to church :) I have been very busy and am very glad to be feeling some better from that nasty tummy bug.

oh yes...Shasta threw up in my bed yesterday and threw up elsewhere in the house both today and yesterday. Poor doggy, I sure hope she is not sick from me :(

Saturday I Went To California To See Bob Dylan

California PA. that is. It was so wonderful, I am so happy :) I have wanted to see Bob Dylan for years.  Saw a good friend there and a good friend came with my Dad and I. I am just so very thankful I got to go. I was afraid I would not get to go because my Dad needs a helper( because of me) to go to stuff like that. I am a handful, He he. Cannot be left alone. The Cal U Convocation center treated us like royalty and escorted us to our seats, the place is very accessible and there is a family bathroom right there. There were no worries about me crashing in some woman's room and my Dad having to save me. Someone really had thought that out. You never know when I might go crash on some cement floor.

Are You Still Out There , Boy Who Licked Toads??

 I sit on the deck and listen to the birds and frogs make their music. I lay down and watch the clouds go by, my life is going by with the clouds.. we all have a limited earth time. I have been thinking about my very early childhood friends , the boy that always wanted me to lick..yes LICK toads with him( I never did) and the older girl that always insisted I didn't know how to sew . The kids I never talked to but we stared at each other at church. What ever happened to the boy that always went in the woodshed to hide and lick toads? He moved. I don't know what happened to those other kids. I wish I did. Would that boy still be my friend? He was older than me. Is his mouth full of warts? I wish I knew.

Music is Good For My Soul

Yesterday my family had the most wonderful house party. There were a good many people I did not know and they were some that I have known for years. The music was amazing but the most amazing thing was the people that were there. Everyone one was kind and nice, not a sour person in the lot. I stayed up wayyyy later than normal and also drank some wine. I played with a little five year old, who was not frighted a bit when I had seizures. She did not mind. We played cooking, house, and princesses ..all those things I find myself still enjoying despite my age. May be silly but when a little girl needs someone to play with I still vividly remember myself at five , so it really is not that hard at all. There was so much love and peace. 

I also sold three of my drawings , that made the evening even better. It is one thing when a bunch of folks say you could sell your work and another thing when they actually buy it.
Peace Love and Happiness.