For People With Afos

https://www.facebook.com/groups/354348394646158/

The Afo Shoe Exchange is a group on face book that allows you to swap shoes that fit afos......I added my oddly sized leftover pairs ( since I have to get 2 pairs for only one).
Anyway..it is a closed group but they added me in just a few hours. It might be useful.

I hope somebody can use my shoes because that would mean that someone out there has feet like me!

Brace Man

Today I saw the brace man and everything is fine. He gave me some new foam for my afo. Afterwards Mommy and I went shopping and I returned a pair of shorts I got awhile ago. I bought a new skirt and a new shirt with the lorax on it.

I am tired. I do not have much to say.

My brother is taking his collage entrance test tomorrow. If you are a praying person please pray he does not panic.

Today he is worried and looks awful.

He was STILL asleep when Mommy and I came home.

I think he was up worrying ALL night.

The Sun Came Out Again Today !

 The sun came out again today , the brace man did not say anything about making me a wedge on my shoe, :) I am so happy about this , so happy !!!! I heard about the meteor , I hope the second one does not kill anyone. It is really weird that this happened because yesterday at dinner Daddy said " I feel as though the world as we know it shall end, soon" He seems to say something like that quite often when a natural disaster hits. I think he can sometimes sense planetary forces or something. He also seems to pick vacations on disasters too , and not just natural ones 9,11 for example. But not always.
 

The Woman who Had Polio

 Yesterday at I.v. I saw a woman I had seen around but never talked to because she always had a private room. I said hello like my normal habit  and started to take my brace off ( I am supposed to check my skin), she was watching me and told me how she also has a brace similar to mine that she cannot stand to wear because it has metal parts at the ankle that cut her. She really wanted one like mine and she could not wait for her daughter to see mine . Well the daughter came and took a look at mine , she told me how her Mom's was different because her Mom's ankle completely turned in.....well so does mine so I showed them how I my leg is when I walk without the brace....I was like her Mom..sort of , you see she had polio and her ankle got stuck like that.Awful. I wish they could of done something before it got stuck, it makes me so sad.
  Today at p.t. I found out I will probably need a wedge attached to my shoe because of my knee and leg is still turning some. In the depths of my soul I was thinking " NO WAY! Grrrrr!!!" Then I wanted to kick my own butt because I have a ankle that can still move and at least there are things that can help my walking, and there I am all mad because I need a little more work than just a brace.
   Also I was decided to go to p.t without the walker and I did, I used their walker for some of the exercises but other than that I did alright :) !!!
   And here is something I find really funny , Mommy kept calling p.t.,  phys.ed .

Excitement, Disappointments, and Happiness.

On the 31st I got my brace . Oh how excited I was, longing to use my leg again and get rid of the old walker. Well it has a break in period and I have to use the walker still . Poo. I am still so glad I have it now so  hopefully I can dance..soon. I had to wait since November for the thing and my leg started not working in September. That is a long time. Anyway I had to get new shoes because the brace is so big . My foot it tiny, ridiculously tiny ...think size 1 tiny. But I am glad it was tiny enough that I could stay in the kids section . Why???? So my shoes match!! If one was woman's and one kids they would not match. Also no dress shoes would work with the brace :( :( :( :( :(   (that means sneakers at church).  I did get to buy a book I wanted since August and yesterday I got to go to a Jazz Dinner . I almost didn't get to go and I ask to go to it for my birthday and I would of been really sad if Daddy said no. Grandpa showed up at our house and said he was going and that saved the day!! A good friend was there , I had a heap of seizures 13, but that's better than 25 or 30.

Something That is Bothering Me........

 Something that has really been bothering me is the fact that my left leg has not been working properly, starting in September. Maybe it is because I have hit my head too many times, maybe I just have too many seizures, I don't really know. I am afraid. I am afraid of what might happen next. I am unhappy I still cannot use my leg. I am supposed to get an AFO Thursday, that has taken months. Everyone thinks I am so brave but I am not nearly as brave as you think I am.
 I am really tired of taking my medicine, even though I know I must I still don't like the way it makes me feel. If I quit , like they tried in hospital, I have seizures nearly non stop and since it seemed to take the grandmals away I just cannot stop. But life goes on and I absolutely must continue on and pray that God gives me the grace to continue on and to do so without deep depths of sadness.