Wednesday, September 9, 2015

I Don't Know What To Tell You

So much has happened this summer......mostly scary things like hospitals and tube feeding....and things that make me say OUCH like a nasty spinal tap. ( o.k. scream and cry to be honest )

There are awesome nurses and scary ones.

Isolation gowns make people look like puffy yellow ghosts.

There are good medicines and ones that will haunt you....

Frightening conversations about TPN,  for those of you who do not know this is nutrition by central line which I refused. ( too risky for infection in my opinion since I often get infections of various sorts, my blood counts are often low and I don't have any answers about that. )

My tube feeding sometimes works other days I fail ....I mean it all comes out.

My stomach does not always work.

Frustrating.

But I am here and yesterday was a great day and for the second or third time this year I went shopping.

Maybe I will go into more medical  details sometime but not right now....maybe never!

My home is sweeter than ever.


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