Yesterday was a good day...I had a Neurology appointment which seemed to go fine. My prescriptions were re-filled and the doctor thought I was on the right path with the plans we had to go to a movement disorder clinic at Johns Hopkins. That was that ....I did not give it a second thought.
My Daddy took me around to some stores I got some new books ...met some kind people.
We went home...I ate dinner. I read some, watched some television and went to bed.
Today when I got up....Mommy had something to tell me...the doctor from Johns Hopkins wanted me to see the guy I had been seeing...the guy who thinks I am too bent up for him to work on my hand, the guy who said "find someone else."....THE POOPYHEAD guy!
I did not cry but I was sad.
I was hoping to find a compassionate doctor who would hear my voice...one who would try to understand me.
How can there be so much kindness and so much hate...or careless people at the same time?
This feeling is overwhelming.
This feels too big for me.
It is too big for me....but not too big for God.
God has given me so much love...God gave me parents that love me...God has used strangers to show His love for me.
God is bigger than man even if the man has a white coat and fancy papers on his wall.
Mommy found a man in Morgantown who does botox and treats Dystonia.
Mommy called them...they called back....they gave me an appointment.
There are many things I can do with 2 hands that I cannot manage with 1.
Getting dressed would be so much easier....and a lot of other things.
I know I am really bent up...even if my leg would be straight I think my back and neck would pull me over.
Basically I guess I am asking for a hand.
The use of my hand.
Maybe I will not get what I want...
But I will get what I need.
God will take care of me.
That is what has been happening.
A lot of people have been asking me "Whats up?"
Now you know.
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