Wednesday, October 9, 2013

O.k.

 Lately I have been o.k.

Sometimes I am too tired and sometimes I am less tired.

Too tired of seizures and sore throats, I feel like I can't deal with it anymore but then the next day comes.......and I am sometimes less tired.

I feel like I am used to this, I have done it for years now ...I can do it today for sure.

Really the thing is I don't really have much of a choice except to keep going.

I am trying to keep doing stuff no matter what, but some days I really don't do that much.

I got to see Ralphie Monday which was fun.

And I went to see Grandpa last Sunday . Grandpa gave me a ride in his awesome Jag!!!
( That did cheer me up!)

2 comments:

  1. You both look adorable! And I'm sorry that you're not feeling better -- I can only imagine how difficult all of this is. From a mother standpoint, I wonder how my daughter Sophie does what she does each day given what she endures. It breaks my heart.

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  2. Besides feeling rough I am upset.
    I am upset because my doctor wants me to go to Johns Hopkins. :P
    I HATE that sort of thing. I don't want to get stuck in the hospital and I am the sort of person they like to stay. If it would help then fine, but ...if it doesn't I'd rather be home!
    And if I did go they are NOT taking me off of my medicine I want to be awake.

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