There is a girl who wears a helmet, Maybe you have seen her?
Maybe you stared at her because you were curious? You probably want to know why she has that helmet on................
........I will tell you some things about her. She has a seizure disorder. Sometimes she will fall down and get hurt.
Sometimes she might stare and not be able to talk.
Sometimes she might just be doing something odd, like smacking her lips or picking at her clothes.
Maybe you saw her have a seizure? Maybe it frightened you? It is o.k. to be a bit frightened, but please don't run away from her...........
.......She still needs friends!! She likes it when you talk to her, she likes it when you smile. If she does not smile back .....she is probably having a bad day and is really really REALLY tired.
How do I know these things? I am a girl that wears a helmet!
If you see a girl or a boy having a seizure, do not hold them down or try to force them to stop. Do not put things in their mouth. If they fall someplace dangerous or are standing someplace dangerous ( like a road) tell a grown up (if you are a kid).
You should tell a grown up anyway , even if it didn't happen in a dangerous place.
Be A Friend!
Sincerely, Jessica
Really terrific! I hope it gets published and distributed!
ReplyDeletethis was awesome - it could have been Amy's story - Thank you so much for sharing your blog - I'm hoping to read more when we get settled into the new house. Thank you so much for sharing this with me, you're Amy's voice!!!! Hugs and hugs and hugs - http://www.youtube.com/watch?v=Cd0o5wlLLjs
ReplyDeleteWell done Jessica, you're really talented.
ReplyDeleteI know a lady in England who does cartoon-style books about disability - her name's Hannah and has a connective tissue disorder called Ehlers-Danlos syndrome (EDS). Your drawings remind me of hers a bit, in that they reflect her personality a lot and are quite girly. You can find her on Twitter as @stickmancrips or on Facebook as "Stickman Communications by Hannah Ensor".
Thank you :)
ReplyDeleteI love it, Jessica. Sharing it with the girls tomorrow.
ReplyDelete