Hopes For The New Year

 I hope I have at least one seizure free day, as it's been over 2 years since that's happened.

 No matter what , I am just going to be glad to of made it to 2014!
Everyone should be, really.

Now I shall tell you about Christmas and such...... I was extremely busy working on gifts and things for my family. Christmas eve my parents , Aaron, Kelsey and I opened gifts and played some Christmas mad libs........The weird thing was someone used my name and said that I wore bells around my wrist that would jingle whenever I fell.   I DO! It is sort of a low tech alarm I guess.

Anyway the next day my Grandparents and Katie and Ethan came over and we had more gifts and played more mad libs. I couldn't stop laughing, one really should stay away from that game if you have a sore rib, I fell and hit it on the bathroom sink days before..not because of a seizure though just because I was unsteady.

Not the next day but the next was my Dad's birthday and we went to my uncle's house which is always fun and there was some good music there.

Then not the next day but the day after that was Kelsey's birthday and church. She had a friend over and seemed to be having fun.

Yesterday I had i.v. and waited and waited and waited to see the doctor and then... my friend Tammy came in I was so glad and it made the day better.  I missed her so much and I pray for her everyday.
I also saw my friend Mike and I hardly recognized him because hes got hair now!! He even grew a beard!  I hope that means he is doing better, we don't really talk too much about how we are . We both pretty much said the same thing , that we had good days and bad days.

I feel like it's been three weeks since I did anything on this blog...I guess I'm tired.

 What I made for my Dado ( I call him that sometimes)..I sewed the fabric on the sweatshirt I didn't make the sweatshirt, sorry it's sideways the computer was not cooperating.

 The back of it....

 Aaron's......

         Kelsey's.......

        Momma's...........

     The card I made for Grandpa, I made a different one for my Grandma.

 So that is what I have been up to. Very busy!

Happy Winter Solstice Everyone!!

In the past I have really offended some people by saying that.

 I do not mean it to be so, the winter solstice is something I am thankful for...something I in fact rejoice in.

So far today has been quiet and I am tired. I am drawing purple roses...yesterday I drew this.....

Flowers and Music...

 Yesterday was a really wonderful day, first of all a good friend of mine was coming over sometime in the afternoon, and then we were going to go and listen to jazz with my grandmother at Dante's ....And to make it even better another friend was there Eric!

Yes I was very happy , and I was even given some flowers..which for me is almost like some sort of drug, I have an overwhelming inclination to draw them before they die. I stare at them till I nearly throw myself into some sort of trance, and draw and get blisters and draw some more. Maybe that seems silly but to me it isn't.

The Life of Bob The Evil Stickman ...And How it All Ended

 Today I found an old book I wrote...which really is not that unusual since all three of my sibling were in their own book clubs that I wrote frequently for years.

The story in this one however is very unique, at least I think so. ( warning it is intense)


The Life of Bob, The Evil Stick man And How it All Ended!

 Meet Bob the stick man. He lived on some paper with his wife and children.

 Bob had a house drawn on his paper, it was his house. Bob had a garden.

 Bob had some sheep. Bob had his own world drawn for him on his paper.

 He had to water his garden ......and tend the sheep.

 Bob's wife and kids helped him. The garden grew and grew.

 Before long they could not water it enough. It shrunk up. Bob's wife made pie. They didn't have to water that plant anymore.

 Bob liked the pie. Bod did not want to tend his sheep or water his garden.

 Bob's wife and kids could not do it without Bob. Bob decided to come off his paper and draw some water on the garden so he and his family wouldn't have to water it.

 Bob was bad. The artist is supposed to draw , not Bob! Bob's garden was flooded!

 Bob could not erase crayon, so they had to eat the sheep because the garden seemed destroyed.  After they had eaten both sheep, Bob came off the paper again and drew some greenery in the flooded garden.

 It seemed like a fix but it wasn't. All the water became green. Bob and his family turned green when they drank the water.

 The only not- green water came from his daughter Bab's tears. Bob had destroyed his world.

 The artist was sad. Bob cried out, " Help us!"

 The artist did not erase crayon. The artist did not have white- out.

 The artist was angry!  "Why did you destroy the world I made for you!," He yelled.

 Bob was bad. " Because I felt like it, Duh.", said Bob.

 The artist had enough. He picked up Bob's paper and took it away.....Away to the next room where the wood stove was.

 The artist opened the door and threw in the paper. Thus was the end of Bob's world. Let this be a lesson to you....Take care of what you have and don't play God.
The End of Bob.
( told you it was intense!)

Reading My Christmas Capote Book

 Today at i.v. I sat there trying to read my Christmas Capote book, it was a gift from a good friend last year....... I have read it probably at least 50 times.

I read it so many times because my friend was on a trip and it made me feel closer to her,
it went with me to doctors appointments and it went with me inside the hyperbaric chamber. 

the book came with an audio cd, and I would fall asleep listening to it.

So today I decided to read it again and much to my surprise......I had forgotten most of it.

Well.....that sort of bothered me.

Anyway, other than that today was mostly good.

It's rather ironic I think, that the book title is" A Christmas Memory".....and I forgot it!

But if I think about all the stuff my brain has done since I read it last I feel better.

What Has Been Going On...

 Well before I had the bad seizures I went shopping with Grandpa which was fun , but very different than years past since Katie had to work , Aaron had homework and Kelsey didn't go. 
 I did like having him to myself though!!

December 7th was Katie's birthday which was fun since she and her husband came over and had dinner with us.
Wow, this is her first year as a married woman!! 

December7th made me sad too though because Aunt Kelly's memorial service was then....It wasn't near my home..I didn't go, but I did think about her ...and cried some.

I will always think of her as Aunt Kelly even if she wasn't my aunt.

Well then I had some very bad days ( bad seizures) but I am better now and started sewing like crazy ( I had some gifts to make) , and wrote letters till I gave myself blisters....Those kind of blisters sort of feel good in a way, it means I felt like I could get my thoughts together and I could think enough to write them.

I also wrapped some gifts and put them under the tree :) 

My Mommy and I put the decorations on it this year......times are a changing.
It really wasn't so long ago that my youngest siblings would be excited about the tree.

And yesterday evening Katie and her husband, Ethan came over :)


                                  Katie's Hugs :)

                            Aunt Kelly and Mommy

Out of Sorts

I have been feeling out of sorts and have not been doing very well.

I had some bad seizures, all of them are bad but these are dreadful.

I have not wanted to write.

I will try to write more soon........

I Am Not Fearless....

 I have wanted to be fearless.........some people think I am.

My sister got me a very beautiful bracelet that says fearless on it ....I love it but when I go to i.v. I take it off.

No , I am not afraid of needles ...I am just afraid of what my friends are going to be like.

I mean, you know.... how much worse they got.

Death is not something I fear , its the way people have to live that frightens me.

So I just wanted to say .... I wish I was fearless but I am not.

Giving Thanks

 I am ever so thankful for my family, friends and life.

Everything seems to be changing, as one of my sisters is married now, my brother is in college and my youngest sister will soon be 16.

I am glad that we have each other ....and I am looking forward to our meal on Saturday.

The Artist Man

 There is a Artist man who lives close to me.

We used to draw together underneath the trees.

We would talk together and make each other smile.

I have know this man for a long while.

But there is something about him that is taking a toll.

Monsters are inside of him , eating his soul.

He is my friend though, sometimes people ask me why.

It is because I see myself in him, though when his monsters come out ,
 sometimes I cry.

For years my friend, I have prayed for you.

There is nothing else I can do.

But my friend, I keep telling myself that God must love you at least as much as I do.

I love you Artist man......but I hate your monsters.

Pain and Happiness

 I don't really know how to begin....There is a lot of stuff that happened this week..
..And some things I wanted to say about something that happened a couple of weeks ago........

Monday was BAD I was o.k. during i.v. but I got sick and that long ride home was horrid but thankfully I felt a good deal better by the next day.

 I was just tired, thats all.

I found out my one of my Aunts was or maybe is now dead or dying.....She isn't my aunt really ..but I called her my Aunt.

I have been praying for her specifically for a long time ..and its so strange that even though I didn't know what was going on , I found myself saying her name over and over again when I pray....normally I wouldn't do that.

Some friends came over the other day..It was wonderful and I had a good time , but it was terrible too.

For the first time in my entire life I nearly told someone to get out of my house and go home.

Words hurt.




Now on to the HAPPINESS part...

I am on the front page of the newspaper for the Easter Seals stamp!!!
My picture and my drawing!!!

I am glad about that.

This week has been rough but not all bad.


Now on to something that happened a couple of weeks ago... ( I think this person might be reading this, so I thought maybe I'd better say this) 

There was a girl who has a facebook page that I was asked to like so I did..
...I normally do if someone asks me, but she wrote me very odd messages..
She said I wasn't who I said I was , that I hurt her that I was someone who wrote a blog about HER!!  
Well in case she reads this blog about herself, this blog is Jessica Riley's , it isn't yours....it is not about you,( except this wee bit here) and yes since you first asked me to pray for you ,I have been and will continue to because I think maybe you are in need of it? Who isn't in need of prayer anyway???  I never have met you so.... I don't really know whats up. 

Fortunes

Thursday I went shopping with my sister that recently got married, Katie.

We ate Chinese food and we read our fortunes out loud and I got this:

On the back of my fortune it said ..Drunk. Katie and I laughed of course, and then she had to read hers, I don't remember the fortune but the back of hers said Drinking!!

We really laughed then .

When my sister was paying for the food I was looking at the little animals they had for sale there, and the lady gave me a little dog! She gave Katie a little mouse too, she was so nice.

Later when we went to the mall we were treated with extreme kindness. We were even given bottles of perfume...ones that they don't normally give out.

We went to goodwill and I bought what I thought was a nice long flowered dress that was like early 90s style, I tried it on the next day just to see what it looked like and I realized it is NOT a dress, it's a jumpsuit!!

I will still wear it I'm sure. :)

The trip was a lot of fun, I rarely get to go out with Katie, just she and I ....it seems strange she is married and well.... a grown up.
  
We could of went to a bar , but we didn't.

I Have Had a Strange Pet

A SCOBY!! You know one of those things to make kombucha ..anyway I took care of it and yesterday my mom helped me start to make the tea.

I guess that probably doesn't seem that exciting but I love kombucha so....it is to me!!

I don't really have much to say..I have felt pretty rough, but here are some drawings for yous to see.

 For some reason the light from the scanner reflected really bad on the rose, this was the best I could get it for now.

 I drew the squish gourdish sort of thing today.

Mondays...

I.v. day, and today I got to see Ralphie!!

The day still seemed very long.

Also Sandra Westmoreland is the winner of the Easter Seal of the year contest!!

Thanks to everyone that voted for me, I am just so excited that my artwork will be on one of the stamps 2014!!!

That is all I have to say right now.

Good night folks.

Not Good...

 I wasn't feeling too good Monday despite having an i.v. and everything , normally I feel better after I have an i.v.

When I came home this was in the mail....

It made me feel some better, I even laughed, something about that pumpkin's squishy face!

It is always nice to hear from Kathie she is a really nice lady I met on a trip to Florida a few years ago.

Anyway I found out why I felt so bad....grandmals were coming. They have come and gone and I feel worn out and not myself still.

I hope the grandmals don't come back ever.

Halloween Party

 Yesterday evening for the very first time in my entire life I dressed up for halloween.

Someone had told me before that halloween  is the devils holiday, my family said it was bad.

I don't like creepy stuff or evil, I wanted to dress up in my princess dress that I have had for many years.

Daddy said it was fine and guess what? He even dressed up! He wore his clown wig and I got to put ponytails in his beard.

What is really funny is besides the band and a couple of employees my Dad and our friend and I were the only ones dressed up!!

It was fun!

Other things I did consider going as was Laura Ingalls Wilder, Annie Oakley, or a gypsy.........but then I thought my chair is a royal color and its sort of like a thrown.

If my Dad goes to another costume party I think he should die his beard yellow and paint his face orange so he can be the Lorax!

Easter Seals Lilly Of The Year Contest.....

......Since I was a winner in the first half of the contest now I am in another contest for..........Lilly Seal Of The Year!!!

Please vote for me, Jessica Riley.http://goo.gl/VXq9Av

Also please share it with your friends!!

Mommy Said...

....That this is her prayer : that my seizures will go away as quickly as they came and my leg and everything else will heal up completely.
 she told me this because I said I was sad that I have not been able to roller skate for so long ( years). And that I am even sadder that my feet are so small that I don't even know anybody I can give them too that can have some fun with them.
Mommy said there is still hope.

Here I Stay

Here I stay , away from my previous plan...

To be honest I had a feeling I wouldn't be going.

I had a feeling it was sort of dumb to even plan.

So I am here and its o.k.

No going out to a concert with Daddy tonight.

I am too worn out.

But I am still here, so I'm not completely worn out just yet.

I am just more tired than I want to be.

But you can't always get what you want.

I Wish...

There could be more love and forgiveness in the world.

That people wouldn't say mean stuff about others...
...there would be more peace.

I am not saying you should accept things that are wrong, I mean people should love others more.

If people had more love and forgiveness.......there would be more peace but most unfortunately...

It seems like some people love to hate ....and have loads and loads of drama.

Whats the deal???

I don't understand so much.

Why does God let so much meanness thrive?

Maybe He will tell me someday.

Well,  peace and love my friends. 

Frying Germs

...You never know what is going to happen...
last night I had a fever and felt awful ...but today I feel better than I have in weeks!!!
 Maybe I had to fry some germs inside of me??
He He

O.k.

 Lately I have been o.k.

Sometimes I am too tired and sometimes I am less tired.

Too tired of seizures and sore throats, I feel like I can't deal with it anymore but then the next day comes.......and I am sometimes less tired.

I feel like I am used to this, I have done it for years now ...I can do it today for sure.

Really the thing is I don't really have much of a choice except to keep going.

I am trying to keep doing stuff no matter what, but some days I really don't do that much.

I got to see Ralphie Monday which was fun.

And I went to see Grandpa last Sunday . Grandpa gave me a ride in his awesome Jag!!!
( That did cheer me up!)

A Pencil Drawing ....

......

Yesterday I got to visit my Grandpa and go on a boat ride with my Dad and some friends !!!

It is only about the third time I have been to the lake at grandpa's this year and it is the only boat ride I have had in a looooong time. I am so glad I got to go.

Happy!!

 My artwork is going to be featured as an Easter Seal 2014!!!!

I won the contest and I could win Lilly of the year.

So excited....and I feel better than I did the other days except for my throat.

Well , I Have Felt Bad For Awhile.

 I have been getting very bad headaches, the kind that I hate, not that I like any of them, these worry me.

My belly has been angry about something .

Yesterday I went to the doctor and he wants me to go to Johns Hopkins but I don't want too. I am tired of that sort of thing.

:(

Also I am very upset because my dog cannot sleep in my bed with me now.
May God please make the bloody fleas die !!!!


Well on the better side of things my Moms birthday is today, my brothers was Sunday, and the sun is out.

I Am So Happy!!

Because my sister found a good man.

I hope her honeymoon is wonderful.

Daddy is probably moving her furniture today.

I hope it is warmer where they went than it is here.

My Sister is Married Now!!

 It was a very rainy day but it was o.k. because we had some tents.

It was so much fun seeing family and friends.

There was food there for me. ( I can't have gluten or dairy)

I am sort of glad it's over , but then I sort of wish the party could last forever.

 Some of my family....My sister is the one in the tiara, she changed out of her dress.

Action shot of my cousin and I dancing, you can tell I was moving!!
That's all for now folks!

Weddings...

Are much work.

My sister is exceedingly happy.

I am happy about it also.

Rehearsal is tomorrow.

I Don't Like Cool Weather....

 But I like it far better than snow!!!

So yes it is quite cool .

Some leave are turning....
..summer went goodbye.

I don't like cool weather,

 but I do like to see the seasons change.

Better Than Last Monday....

 I actually remember all of my appointment today, and wasn't zonked out in my chair.

Much better.

I must of looked pretty awful last Monday.

Nurses were saying how much better I looked.

I hope I keep feeling better because this weekend is going to be really busy.

My sister is to be wed on Saturday. 

All the bridesmaids are invited to a sleepover party with my sister the night before but I can't do that.

The rehearsal and wedding will be enough.

I want the bad seizures to stay away.

I Don't Have Much To Say.......

Here are some irises.....

I still feel out of sorts, surely I would be over what happened early Monday morning.....maybe not .

I wish I could describe it but its something I just can't.

3 Grandmals = :(

 Three grandmals happened the night before last, well I guess it was in the wee hours of the morning.

I don't remember.

I don't remember much of the doctors appointment yesterday.

Probably a good thing, that I don't remember.

It's been a little over a year since I had grandmals.

Bummer.

What can I say? I want to say a curse word for poop that people say when they are really really mad.

I am just going to say.......POOOOOP!!!!!

I am mad.


Well, hopefully today will be better than yesterday and my leg will cooperate and The grandmals will stay away.

More Drawings....

 The difference between 44 cent pencils and the better ones...( experimental)