And This Was All Planned

Many of you know I really am fond of Hello Kitty , well anyway I decided to go on ebay and look at all the cuteness ..........Well I came across this wondrous lot of kittys and in the description  it said that they were trying to raise money for their daughters tube feeding formula, this caught my attention since I changed formulas awhile back and I wondered if maybe the extra six cases we have around was what they needed and maybe I could trade.

It turned out that their daughter actually did not use that formula but she uses my current kind, I had a small conversation over the ebay message thing about tube feeding and stuff, what I did like and what I do not like.....since the girl is only one year old she can't tell them what hurts.

I felt I had to buy the kittys so I did.

I find connections on the internet that I am in awe of.

This can only be explained by God......I mean seriously I could of looked at any number of other hello kitty things but I ran across someone who needed some human kindness and hope.

They said may Gods blessings be upon you, and they are indeed.



Today my caregiver was here and a young friend and I had a great time......She was curious of everything and wanted to know about my feeding tube, she sat in my wheelchair with my permission of course and then I and my care giver gave her a lesson about  upper body strength.....Then I gave her a kid friendly flyer about seizures that I keep on hand from the Cleveland Clinic because she saw one.....She wanted to see the place where my VNS is and then we did some crafts for her doll , and strangely enough she started an argument about the color of my Dads beard!!! I did not think I would stop laughing it was so funny because she has not met my Dad. This ......this was a good day and my friend held up the flyer about seizures that I gave her and said " Look Mom, I am homeschooled now!",  I guess she felt like she had learned a lot and I suppose she did...art, a Bible study, and a science lesson based on me I guess.

Yes, this was a very good day.

Wow.... I Am Here !!!

Sorry readers that it has been such a long time since I last wrote anything.

December 31st 2015 I had a VNS placed  ( a pacemaker type of thing ) , recovery was a little rough ....bad seizures and stuff.

The thing was turned on 2 weeks later the static feeling in my chest was odd .

It seems that it helps stop a seizure if you catch it in time, the device was turned up again this past Monday and I had a bad seizure like 2 or so days before that and was exhausted.

Now sometimes I really feel it shock me!!!

I had a good rest today though which is good because I am to get IVIG tomorrow at home.

IVIG is immunoglobulin from over a thousand blood donors , I look up the populations of the nearby towns and find myself in awe of all the people that had to of given blood for me this past year.

I am in awe of all the human kindness shown to me....a letter, a card, a package in a mysterious brown box ....a painting, and so much more.

I wish to thank everyone but I don't know where to start so I start here.

My life does not seem very stable.....I guess because we all are dust anyway .

Some of you know I was having trouble with my oxygen when I go to sleep , well I failed the test so um I guess yous out there that want to know now you know.

I am still happy and thankful for my life and I want every doctor out there or anyone else who thinks I ought to be unhappy and fret because I am not like other people my age to know that ......and I wish them to know anger and unhappiness does not get one very far ......I think they already know it .

So....that  is that.